I'm Kim, new to this forum. I'm from Maine and recently dx with hEDS. I'm feverishly scouring the web for resources and information on EDS literate practitioners in the new England region. I'm currently in the care of my PCP and Rheumatology but they have no idea what to do, suggest, educate, refer. So I'm doing all the work. I am under the care of my ND who has been wonderful to work with. Very helpful, but need someone who has prior experience in treating hEDS. Looking forward to meeting you and learning more. Thank you.
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Hi Kim! this is Michaela. I have not been diagnosed yet but believe I have hEDS. I have been working on finding a doctor who knows about the condition. Nikita and I have met twice already and would love to get to know you!