Hello! When I have been in a flare up it helps to wear wrist braces at night. I also sleep with a pillow under my knees and hold a pillow if I’m on my side. I’m sorry you have been in so much pain. Other things that can help if you have it available to you is physical therapy and medication. Glad to meet you!

Hi Kim! this is Michaela. I have not been diagnosed yet but believe I have hEDS. I have been working on finding a doctor who knows about the condition. Nikita and I have met twice already and would love to get to know you!